Sunday
Apr182010
Asperger's Syndrome & A New Normal
Sunday, April 18, 2010 at 10:59AM
Logging into my blog account today, I was shocked to discover...
it has been many weeks, months, in fact, since I have finished and published a blog article on RebelHousewife.com. Oh, I've started many thoughts, on paper, on post-its, in my head, in TextEdit and Word. There are several waiting patiently on the blog as "unpublished" -- wonderful starts about kids, Aspergers Syndrome, homeschooling (kind of), the teenager, the learner's permit (driving?!) and banishing the XBOX 360 from our home. There are others about books, events, recipes and cost-cutting strategies for family financial survival in tough times.
I seem to have a problem, of late, finishing what I start. I've never been a non-closer before and yet here I am...
It has been an eventful couple of months.
I actually logged on today to write a thought about Iceland and Vanity Fair and NPR, volcanoes and economic meltdowns and such, only to make this horrifying discovery. I am going to finish this, and fix the Twitter link on the website and then maybe I can get back to that thought about Iceland...
And maybe that's the answer. Why can't I finish anything I start lately? Maybe it's because, every time I start something, something else comes along to take my attention and focus. The constant distractions of life with a busy entrepreneurial husband, three children and Mocha-the-dog. I don't work outside the home. I can't imagine how I would. We no longer have the big house or yard to manage, having downsized to our midtown condo and our one-mile live-work-school-play radius (and loving it!). What excuse could I possibly have to be such a slacker?
We started this school year with three kids in three different schools: 15yo Puberty Angst Boy in 9th grade at the high school; 12yo Drama Queen in 7th grade at the middle school; and 9yo ADHD Phenom started the year in 4th grade at the brand-new elementary school.
Ah, there's another clue to what's happened: Turns out, our very bright, very ACTIVE 9yo ADHD Phenom is not ADHD at all (okay, well, that's a whole 'nother start that I do need to finish, kind of controversial). He has Asperger's Syndrome, which is high-functioning Autism, so he is our 9yo Aspy Phenom. Not a lot of people know what that is, or have any idea what Asperger's Syndrome is (we didn't), so I have some explaining and education to do on that point, I know.
But before I can explain, educate or crusade for a better understanding of Asperger's Syndrome, I needed to understand it better myself and live with it for a while.
* * An aside: If you are at all interested in Asperger's Syndrome, please read the wonderful letter Especially for Grandparents of Children With Asperger Syndrome by Nancy Mucklow. It is appropriate and highly relevant for anybody close to or in the life of a child diagnosed with Asperger's.
So what happened next: In January, we brought the 9yo Aspy Phenom home. The brand-new public school was on a shake-down cruise, getting all of their new-school processes, programs and procedures worked out. We were on our own shake-down cruise, trying to figure out and adjust to this new information and really-quite-remarkable aspect of our son -- finally, we had understandings and strategies that were actually working and helping him, whereas the ADD strategies -- including the medication he was on for more than two years -- never served him well. The school couldn't keep up, couldn't meet his needs academically or provide the structure and stability he needed.
He now attends school from home, although he is not technically a "home schooler." We enrolled him in 4th grade in the Georgia Cyber Academy (GCA), an online public charter school supported by the Georgia Department of Education. As a public school, the schedule and curriculum is established and GCA provided everything we need to attend school from home: books, workbooks, novels, math manipulatives, even all of the materials needed for science experiments! We have a teacher we work with, mostly online, who monitors progress and administers his IEP (yet another complicated issue for another time). We have an abundance of opportunities for social interaction, with field trips and meet-ups and activities all over, all the time.
And there it is: I haven't been able to finish a thought in months, or devote the time I used to have to lose myself in reading, researching, writing, reviewing or blogging, because I am teaching and experiencing the 4th grade all over again with my 9yo Aspy Phenom. It has been amazing -- not EASY, as this has been a HUGE adjustment for both of us and for the entire family. It has been a very challenging transition, but worth it to have the time and opportunity to work with and get to know this brilliant child.
Now then, that's not such a bad reason to be a slacker, after all.
I'm glad I was able to finish that thought.
I am hoping there will be more!
it has been many weeks, months, in fact, since I have finished and published a blog article on RebelHousewife.com. Oh, I've started many thoughts, on paper, on post-its, in my head, in TextEdit and Word. There are several waiting patiently on the blog as "unpublished" -- wonderful starts about kids, Aspergers Syndrome, homeschooling (kind of), the teenager, the learner's permit (driving?!) and banishing the XBOX 360 from our home. There are others about books, events, recipes and cost-cutting strategies for family financial survival in tough times.
I seem to have a problem, of late, finishing what I start. I've never been a non-closer before and yet here I am...
It has been an eventful couple of months.
I actually logged on today to write a thought about Iceland and Vanity Fair and NPR, volcanoes and economic meltdowns and such, only to make this horrifying discovery. I am going to finish this, and fix the Twitter link on the website and then maybe I can get back to that thought about Iceland...
And maybe that's the answer. Why can't I finish anything I start lately? Maybe it's because, every time I start something, something else comes along to take my attention and focus. The constant distractions of life with a busy entrepreneurial husband, three children and Mocha-the-dog. I don't work outside the home. I can't imagine how I would. We no longer have the big house or yard to manage, having downsized to our midtown condo and our one-mile live-work-school-play radius (and loving it!). What excuse could I possibly have to be such a slacker?
We started this school year with three kids in three different schools: 15yo Puberty Angst Boy in 9th grade at the high school; 12yo Drama Queen in 7th grade at the middle school; and 9yo ADHD Phenom started the year in 4th grade at the brand-new elementary school.
Ah, there's another clue to what's happened: Turns out, our very bright, very ACTIVE 9yo ADHD Phenom is not ADHD at all (okay, well, that's a whole 'nother start that I do need to finish, kind of controversial). He has Asperger's Syndrome, which is high-functioning Autism, so he is our 9yo Aspy Phenom. Not a lot of people know what that is, or have any idea what Asperger's Syndrome is (we didn't), so I have some explaining and education to do on that point, I know.
But before I can explain, educate or crusade for a better understanding of Asperger's Syndrome, I needed to understand it better myself and live with it for a while.
* * An aside: If you are at all interested in Asperger's Syndrome, please read the wonderful letter Especially for Grandparents of Children With Asperger Syndrome by Nancy Mucklow. It is appropriate and highly relevant for anybody close to or in the life of a child diagnosed with Asperger's.
So what happened next: In January, we brought the 9yo Aspy Phenom home. The brand-new public school was on a shake-down cruise, getting all of their new-school processes, programs and procedures worked out. We were on our own shake-down cruise, trying to figure out and adjust to this new information and really-quite-remarkable aspect of our son -- finally, we had understandings and strategies that were actually working and helping him, whereas the ADD strategies -- including the medication he was on for more than two years -- never served him well. The school couldn't keep up, couldn't meet his needs academically or provide the structure and stability he needed.
He now attends school from home, although he is not technically a "home schooler." We enrolled him in 4th grade in the Georgia Cyber Academy (GCA), an online public charter school supported by the Georgia Department of Education. As a public school, the schedule and curriculum is established and GCA provided everything we need to attend school from home: books, workbooks, novels, math manipulatives, even all of the materials needed for science experiments! We have a teacher we work with, mostly online, who monitors progress and administers his IEP (yet another complicated issue for another time). We have an abundance of opportunities for social interaction, with field trips and meet-ups and activities all over, all the time.
And there it is: I haven't been able to finish a thought in months, or devote the time I used to have to lose myself in reading, researching, writing, reviewing or blogging, because I am teaching and experiencing the 4th grade all over again with my 9yo Aspy Phenom. It has been amazing -- not EASY, as this has been a HUGE adjustment for both of us and for the entire family. It has been a very challenging transition, but worth it to have the time and opportunity to work with and get to know this brilliant child.
Now then, that's not such a bad reason to be a slacker, after all.
I'm glad I was able to finish that thought.
I am hoping there will be more!
tagged Aspergers, Kids, Parenting in Asperger's, Blogging, Life at 40, Parenting, School
Aspergers, Kids, Parenting in Asperger's, Blogging, Life at 40, Parenting, School
Reader Comments (5)
I expect we will enjoy and empathize with your experiences as you and your Aspy Phenom make the most of all his unique strengths and abilities. You and your readers might enjoy a series I've been posting at aspergersexpert.blogspot.com where I go through the stages of awareness that Aspies and their parents experience when they learn about AS. Thanks for sharing your perspective! I'm sure I'll link to it in the future.
Peter
Thank you so much for your comment! I am very impressed with the information and resources you have on your blog at aspergersexpert.blogspot.com. I am looking forward to reading through the 7 stages, as I can already identify with so much. It is very helpful to have your perspective and I look forward to keeping in touch!
Live, Love & Laugh,
Sherri