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« Autism Awareness: 250 Words | Main | Asperger's Syndrome & A New Normal (2010) »
Thursday
Apr092015

Autism Awareness - For My Teenager

Autism Awareness - For My Teenager
by Sherri Caldwell - Asperger's Parent, Author and Learning Coach

I am Aware. As a teacher, as a writer and researcher, as Mom to a brilliant 14-year-old son diagnosed with Asperger’s Syndrome six years ago (now included as an Autism Spectrum Disorder/ASD), I am hyper-aware of the differences, challenges, and unique blessings of Autism. It is a vast spectrum of ability and disability, and there is enormous controversy and fierce debate within the Autism community, and those trying to help. I am Aware.

At first, I didn’t understand how closely we were aligned with the members of the Autism community. After the initial four-year struggle through public school, after a cursory diagnosis of ADHD and two years testing medications and behavioral strategies, none of which worked to resolve anxiety, frustration, regressive communication and social skills, and spectacular school-day-ending meltdowns... after all of that, my son was diagnosed with Asperger’s Syndrome. Boom.

“Is that a degenerative condition?”
We naively and fearfully asked, when it was first suggested by the school psychologist, after several years of exhaustive evaluation. I think she may have mentioned it was on the Autistic Spectrum, but at the time, the roaring of the ocean in my head drowned out everything else, along with any clear memory of the other details of that meeting. From there, I started researching. I read everything I could get my hands, library access or internets on about Asperger’s Syndrome, and how this fit my son, how it explained so much, and how it changed our lives, as we came to understand our brilliant, but quirky and extraordinary kid.

Six years later, our then-little third grader is a six-foot, fourteen-year-old ninth grader in high school. He has been in and out of public and private schools, both traditional brick and mortar and virtual public charter school online at home. He has done well-- he is an A/B student, but he does not like school. Our current educational system, even with Special Education and IEP/504 services, does not have the flexibility, understanding, training, resources or support to help these amazing kids succeed on their own terms, embracing their tremendous strengths and abilities.

In many ways, we celebrate Asperger's/ASD as a Superpower. This kid is scary smart: technical, logical, detail-oriented, he is amazing on the computer and with anything to do with technology. He is a gamer, of course. He has a great sense of humor, an insatiable curiosity, intense focus and fascination with a wide variety of topics, especially technology. He interacts online with friends and acquaintances all over the world. He likes structure and routine, he likes peace and quiet, and while he generally prefers to be safe at home, he will venture out for family adventures and activities. He likes going out for meals, and road trips, and he really, really likes vacations on big cruise ships. In his element, I tend to forget about the Asperger’s, what some people call High-Functioning Autism. But it only takes a few minutes in the confusion and chaos of the outside world, for his differences, his anxiety and communication challenges, to become painfully obvious. This is Autism, out in the real world.

This is his future. We know our child has the potential for independent living; he will be fine, on his own terms. But with structured support and training in an area in which he is truly gifted and highly interested—he could be the next Bill Gates, or Steve Jobs, the Facebook guy or Elon Musk. He is a techie geek with some social deficits.

What my son -- and others like him -- needs to succeed, to find his passion, develop his career possibilities, and achieve happiness and independence, is an opportunity to learn valuable skills in a supportive environment, structured to embrace his strengths.

We have an amazing opportunity to provide job skills, career potential and future independence in a highly supportive environment, with the technology company Live Code and their April 2015 Indiegogo campaign, Empower Individuals With Autism Through Coding:
Together with LiveCode, the National Autistic Society, Specialisterne & Autism Initiatives, our goal is to train 3000 young adults on the autism spectrum, across the world, how to code. We will provide an extensive training program with specialist support to help these young adults develop employment skills or gain self-employment in the app business.

I hope you will join me in supporting Empowering Autism Through Coding in every way you can: by donating to support Autism; by sharing the message and encouraging your friends, family, and network to get involved; by participating, if you have or know a young person on/near the Autism Spectrum.



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